Back to day one

John is 19 months old and suffers from Severe Congenital Neutropenia.

He will under go bone marrow transplant in March . John has already had 2 bone marrow biopsy's done as well as 2 blood transfusions.

He has undergone a lot of other test as well .

Neutropenia is a blood disorder that can affect anyone. Some people are born with it. It can happen after a viral infection. In some cases the cause can be a side effect of a drug, or exposure to certain poisons. People can get neutropenia when treated for cancer with chemotherapy drugs. Sometimes it happens for no known reason.

Severe neutropenia can lead to serious problems, which require prompt care and attention as the patient could potentially develop a bacterial, fungal or mixed infection at any time. These infections can be life threatening when the patient is persistently severe neutropenic and it is therefore important that if the patient develops any signs or symptoms of an infection, then he or she should be seen by a doctor as soon as possible and treated with medications to fight the infection (such as antibiotics).

 

We want to inform friends and family of his progress and reach out to others going trug the same thing we are.