4/10/11

Ok so baby was sick today as well. Hopein this is not a new helth isue and that its only a sideafect. We gave out some of the i support john bands. Van is ready and we will head out for chop tommrow.....

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4/10/11

Up at 4am with a sick kido . Baby started with trowing up yeasterday. Called chop the called in zofran. Yayaya a nother med. But if it helps its worth it.

Hope today he can hold things down we have to pack to go back to chop. We hit the road monday...

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4/9/11 get ready to send photos

We are haveing a Bandana Day for Baby John on 4/20 so if u have on put it on for the day . This is not an offical one on there weba page just something we taught would be cool to do.Send us ur photos please ….

 They  were created by friends of Alicia’s because of an experience she had when she returned to school after chemotherapy treatment. The chemotherapy had taken her hair but not her spirit; she was determined to finish school and wore a bandana to cover her head. On her first day back, four different teachers asked her to remove her bandana, not realizing why she was wearing it. Alicia was embarrassed and devastated and so were her friends and family.

After Alicia lost her battle with cancer, her friends decided that the school needed an event to raise awareness about the struggles cancer patients face. Now, Bandana Days are held in elementary, middle and high schools across the country to raise awareness and money to help ARVF fulfill our mission.  New this year we are Banding together for the future.  Our Friendship Bands are made from our bandanas by volunteers and raise awareness of hospitalized teens. Our teen kits each contain a friendship band.  These friendship bands can be sold along with the bandanas or alone. Please contact us if your school or community organization is interested in organizing a Bandana Day/Friendship Band Day. info@arvf.org.

4/6/11

So we r still wating on a med that needs the ins to give a pre auth. Cant pay out of pocket its over 1000 for just a week of it. Gez this stinks

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4/5/11

Ok so its not much news but babys green bands will be in this week. We go back to chop monday cameron goes with this time for blood work.

Baby will go in to sugery tue to have a 2nd central line put in thean moor chemo will start...

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4/5/11

We r home for a week tryed to pick up one of babys meds but we
need aprovel from the ins it sucks when a kid can not get the meds he needs.

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4/3/11

Ok so once again we have hives from the meds. Lets hope all goes well tonight if so we will come home for one week . We will not be aloud any visitors  when we are home. I am sorry or this but drs orders we need to keep in a isolate room. No feavers so far today so all is well so far with that..