5/7/11

Baby john is pretty tired today got platlets early today had fever so is now on antibiotics and had blood cultures done so we are waiting to hear back on those.....praying there negative

5/6/11

Ok time for a long update. This week was a hard one so i did not have much time to update. John has had a blood transfusion and platlets with lasick There has been lots of nasua and trowing up. Johns dipper rash is back as well. The Drs all keep saing he looks good but hes not eating as much as his normal.

His counts are still very low ANC 0 This is one of the big ones he needs to come up.


 Will try to update when hes back asleep....

4/28/11

Cameron has come to see john today for music therapy. Transplant went well yeasterday and the boys are haveing some fun time.

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4/24/11

Today they start the Melphalan. They call this one a Puckey Chemo. Wow what an Easter gift this is. Please keep john in your taughts today. We are hoping this will go well for him. He is been doing well so far so i have not had much to update.

His big brother Cameron comes out on Tuesday. Then Wednesday they will do the transplant. This will be a good day and a hard day all in one. Not sure yet what time Cameron goes in to sugary . Hope to give another update tonight .

4/18/2011

Just some quick news. Chemo back on tommrow at 10am. Do not for get bandana day on 4/20 . NEW TRANSPLANT DAY 4/27.........

4/17/2011

It has been such a week now is the first i had for updates. We started in room 3c7 baby was doing good and started chemo. Oppps road bump baby has/had Roto virus. Had to stop the chemo. Also had to go on iv fluids only as every thing that went in came right back out. 

We are starting to do ok and tommrow we talk about when the chemo re starts. We are now in room 3c13 its a bigger room. We will be here now for 2 to 3 months since lil one got sick. He is on isolation. I will keep every one posted on how things are as i can. We is back on pediashure n jello. wow what a diet .


 If any one can thing of any fundraiser they would like to do or wants to make a donation to help us be here with him please contact me ... You can sand him ecards on chops web page ....

4/12/11

Ok so heres whats up. Lil man was in the or from 8am-3pm . He had a 2nd central line placed . He did awsome but was very tired . He got to his room he is in 3C7... If you want u may send e cards. Chop also has a small on line gift shop that u can send items like toys,Food Vouchers for parents ect.. He starts moor chemo tonight. 
We are taking turns betwen the ronald house and the hospital with the shuttle rides each way. As much as we bouth want to bere there it dose not work well over night.
Cameron had his first train ride home after blood work for his brother...